Author Ann Elia Stewart lost her father to Lewy Body Dementia. While you may not have heard of that, Stewart told abc27's Good Day PA that it is a rare form of dementia that combines both Alzheimer's and Parkinson's disease.
"It's the second leading form of Alzheimer's. It is actually a double whammy," said Stewart. "Right now there ARE about four-million people that have Lewy Body Dementia and in 2050, it's estimated to go up to 16-million."
Stewart explained that when she began to research her father's condition, she found a book that was very frightening. When she wanted to help others, she opted for a different approach.
"I wanted to create, believe it or not, an entertaining story with someone with Lewy Body Dementia as the centerpiece so that the reader can actually walk in that person's footsteps."
"Twice a Child" is about a woman, a single mother, who leaves her job at a Pennsylvania hospital and accompanies her confused grandfather across the country to find his estranged son. Her grandfather begins to exhibit odd behaviors. Stewart describes the story as one that "explores family ties through a series of heartstring-tugging incidents that allow readers to see the world through the eyes of an elderly man suffering from Lewy Body Dementia.
You may visit www.insidelewybodydementia.com for more information on "Twice a Child" including reviews and places to purchase the book.